A Special Needs Trust is really the first step in planning for your child with special needs. If the child is a minor, then keep in mind that as they become an adult, you as the parent will lose your ability to make decisions for your adult child. The path is a guardianship so that you could maintain decision making for them. The second planning that is just as critical is having a care plan. A well thought care plan includes financial, social, and educational goals. The care plan should be updated every year, and kept with the hard copy of the Special Needs Trust itself. If your attorney did not provide with a three ring binder for your Special Needs Trust to keep these important documents, get a three ring binder and keep all the papers organized.